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Pelvic pain and occasional pneumaturia

Women's Health | Last Active: Apr 7 10:29am | Replies (3)

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Hello, I'm so sorry this has happened to you. I have had chronic pelvic pain for five years now, and also saw more specialists than I could either name or count during Covid. I have a very complicated medical history from the belly button down, including low grade recurrent bladder cancer for twenty years. Lots of surgeries and procedures. Many doctors are not well versed/trained in this area, but your pain is Not in your head! The most helpful things I have found were finding a very competent pelvic floor therapist (!!!), and psychological help in the form of CBT therapy. It seems that once something gets chronic ("they" say over three months), a lot of things can change neurologically, including the way your brain and body experience and process pain. As my PT has told me many times, with body and brain, "it's all connected". If you've had gut issues, that can impact pelvic pain too. (I had 18" of small bowel removed many years ago). When the pain cycle persists, it's hard not to have anxiety about it, which can make it worse. And truthfully, sometimes they just can't n pinpoint an exact cause for your pain. All the doctoring is a hallmark of this condition and I know how exhausting that can be. So I hope the PT appointment goes well (perhaps ask about trying a pelvic wand at some point- great for at home to help relax a tight pelvic floor) and ponder some psychological help. I also find mindfulness to be extremely helpful, and there is a free app called Insight Timer with tons of free guided meditations. Best wishes to you on this (confusing) journey and I hope you find the help that you deserve.

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Replies to "Hello, I'm so sorry this has happened to you. I have had chronic pelvic pain for..."

@l73 My pelvic pain journey has been dehabilitating .
Back pain, three pelvic surgeries, trying to figure out hormones, constipation .
I’m trying hypnotherapy, pelvic floor and hormones. I need to find a very good “person” to help with the emotional
Side of everything. My life feels like it’s falling apart.
But I’m trying.