@prarysky I thank you for your reply! It was definitely helpful.
After incredibly disappointing, stressful, and frightening visits with three different doctors with regard to my osteoporosis, I was not getting the full support and treatment all women deserve. And I live in South Florida, for heaven’s sake, where OP is rather prevalent.
I googled “best osteoporosis center in U.S.” and UChicago popped up first. I called my insurance company; I’m covered there. So I did some more research, and made an appointment with one of their endocrinologists for June.
They incorporate nutrition, proper exercise techniques, and medication there (at their Hyde Park campus only). According to their website, UChicago has had a hand in developing several OP drugs in use today.
None of my docs here have provided this comprehensive info, and my rheumatologist now is with UMiami, which is incredibly disappointing, given they have a renowned cancer center here.
Now, I have two tarlov cysts in my lumbar spine, and I am scheduled for a second MRI next week. Depending on what is discovered then, I may have to cancel Chicago. We’ll see.
But the woman who made my appointment at UChicago told me of HER experience with the center, and she assured me I would be in the best hands. She shared her entire story with me and was so supportive.
Logistically, I don’t know how it will go. I may need another endo here in FL for bloodwork and things like that. After my MRI, I’ll get more info on that.
Bottom line: women should not have to use google for information and care. I’ve asked UMiami if they have osteoporosis workshops, information on their website re: nutrition/exercise, and they have nothing. It’s incredibly disappointing.
Thanks so much for responding!
@beachesanddreams A lot of logistics to juggle that's for sure. It's encouraging that the person who made the appointment shared her own story and didn't treat your call as just scheduling a routine appointment.
I wanted to also let you know that I, too, was diagnosed with a tarlov cyst many years ago. When I got home and did some research, I became worried, but for whatever reason, that cyst has not caused any special side effects that I'm aware of. Maybe I was lucky in where exactly it was located.
I'll hold good thoughts for you on both the U of C consult and the tarlov cyst. Even if you have to cancel the U of C appointment you just made to take care of other health issues, you now have one resource you can keep ready for when you are ready!