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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: 9 hours ago | Replies (129)Comment receiving replies
@dadcue I'm not a doctor, so my opinion is just that an unqualified/unskilled opinion. For me the in 2004 the removal of my tumor which was in my small intestine along with my appendix, ileum and 30 lymph nodes in my mesentery of which 8 tested positive for cancer gave me 21 years (give or take) of being cancer free with only minor abdomen issues. I had a laparotomy during my 2004 stay in the hospital. It took probably 12-18 months for me to create a new normal, but it was close to the old normal. Removal now 21 years later is not recommended because the oncologists all believe my cancer (per scans, etc) is not localized, hence Lanreotide injections. As I stated before I am not a doctor, but I believe your doctors know best. Playing for a draw when the doctors sound like they can do better, I'd bet on the doctors. If I may ask how old are you and are you in good shape? I understand why your apprehensive regarding surgery, who wants to have surgery? I hope my answer helped a smidge. Good Luck to you.
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@doonman
I'm 71 and for the past 5 years, I have felt like I was doing well medically. There was a time when I didn't think I would live to celebrate my 70th birthday. I feel like I'm in overtime in the game of survival. My revised hope is to celebrate my 80th birthday with nothing too major to deal with until then.
I have been battling chronic pain and inflammation for 35 years because of autoimmune problems. My immune system is overly aggressive and needs to be tamed. There will probably be collateral damage no matter what treatment I receive for a NET. I might be wrong but if this NET is slow growing and not too aggressive, maybe I don't need to feel threatened.
I'm not afraid of surgery. It is more like having battle fatigue. I have done a couple of major surgeries in the past. The surgeries went according to plan but my post surgical recovery was unpredictable.
Since my immune system is suppressed, I already have major surgery pending on my spine. Pain will be the "deciding factor" for that surgery. I doubt abdominal cancer surgery will be possible but I will see what the NET cancer surgeon says about it this coming Friday.