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Profile picture for Turkey, Volunteer Mentor @tomrennie

@gvk911 You have had a bit of a journey to get here huh? Hearing the diagnosis can be quite a gut punch. Have you been able to catch your breath a little yet? The conversation with the oncologist determines your next steps correct? Do you have an appointment for that conversation or is it just sitting by the phone waiting for the call?

After about three years of getting progressively sicker and unintentionally losing a lot of weight, I was diagnosed with stage 4 pancreatic cancer in 8/22. It spread primarily to my liver and some bones. Due to the spread, surgery wasn't an option. I have been living on chemo since. I get treated at Mayo in Phoenix. I got a folder of information during my diagnosis oncology visit with a mention of Mayo Connect. I lurked around for a few months and learned so much from others. It confirmed that I was fighting for my life, and we are better than me. So, I decided to contribute my journey to hopefully help others by being part of their we. I also learn something new every day here, and it is nice to have a group of peers that can relate to what I am going through. In addition to helping with the medical side of things, it also helps with the mental and emotional side of being a cancer patient. At times, I find them to be equally if not more challenging as the physical obstacles. Until you get the diagnosis, you really don't know what it is like.

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Replies to "@gvk911 You have had a bit of a journey to get here huh? Hearing the diagnosis..."

@tomrennie it’s still a battle I’ve got an appointment Thursday and I’m going to speak to my physician and ask for a referral. I appreciate everyone on this platform. It’s encouraging, I don’t speak of things around my family they don’t want to know ( I think it scares them) so I keep it all inside.. I’m really hoping to get some answers sooner than later. Thank you

@tomrennie
Thanks Tom. I was lucky enough to get an appointment with an oncologist tomorrow. His receptionist called me and asked if I could fill a cancellation. I might be crazy but I am not stupid, well, not that stupid, so I took the appointment. Yes, I knew that pancreatic cancer was one of the worst and I did not think that I would be getting it, but here I am. Hopefully I can make it through. I am sure that I can! Right now I feel good, but now that I know that I have pancreatic cancer I can feel a burning sensation in my stomach sometimes when I am eating. I think that it is just my mind thinking about my pancreas but this is a question for my doctor.
So you are coming up on four years. Hoping that you are feeling fine. Next week I will get back to you and inquire more about you. Thanks again.