@mrgvw thanks for your interest. The oesophagus was completely removed as I had a leak after the first surgery - I think they moved me too soon and didn’t pick up on the fever signs so when they did they had to completely remove the remaining oesophagus and the stomach used in the repair. I was then tested and cancer free so had planned the reconstruction but then the pre op tests showed the liver mets. You can see why I don’t play the lottery with my luck! So I’m currently having Folfox and got the 4th one this week. I’m not suitable for immunotherapy or anything else I was tested for. So my reconstructive work was cancelled. I have liquid nutrition pumped into my stomach through a peg. But the bag on my neck is a stoma bag not designed for this purpose so I’m having to tape it on - which has caused my skin to dry up and crack/ bleed. If it wasn’t for my family I don’t know how I would cope - hence my post to see if any others are in a similar situation. I will have a fresh CT after this next chemo to see what’s what. Thanks again

@mrgvw apologies I forgot to answer the weight question. In preparation for the reconstruction I worked really hard to put weight on and done daily physio. I have reached my ideal weight but have lost the drive to maintain the exercise or anything due to the change in my situation and the surgery now off the table. My family will no doubt keep me focused.