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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
@meleve I’m hoping to find out more information as well. I’m having the same problem. With 2opinions I’m still in a lot of pain and now my insurance won’t cover the CREON and it doesn’t feel like the prescription Zenpep helps.
Replies to "@meleve I’m hoping to find out more information as well. I’m having the same problem. With..."
@ceefer May I inquire as to what insurance you have that won't cover Creon?
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@ceefer
I see that you have obtained a second opinion. Was this with a NET specialist? There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63).
If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/
Often, when a medication is not approved by insurance, the doctor's office can contact the insurance company to request approval for an alternative medication that will be more effective. Has your doctor's office talked with your insurance company about getting the Creon approved?