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@annedallas
Thanks, Anne. I’m trying to get all the information I can before my cystectomy in May. The Hollister bag sounds great. I’m also pleased that you came through all of this with no pain. Was your surgery open or robotic assisted? My surgeon, Dr Tyson, at Phoenix Mayo, prefers open and I won’t argue. He seems to feel that recovery is not significantly different either way.

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Replies to "@annedallas Thanks, Anne. I’m trying to get all the information I can before my cystectomy in..."

@ken17 Hi. My surgery was robotic assisted. My surgeon didn't even broach an alternative. I'm in Dallas (no surprise, given my email) and had my surgery at Clements Hospital, which is part of UTSW.
Will you have a briefing on stomas before your surgery? We had to attend two sessions, and they were helpful, since you are in a daze when you're discharged---it would be a hard time to learn how to handle things.
With respect to ostomy products, the accepted wisdom is that if your stoma protrudes, you're a candidate for a flat wafer on your ostomy bag, not convex. My initial product problems largely stemmed from this truism (plus problems with Coloplast's adhesive). A Hollister phone rep finally urged me to try a convex model, and that's when everything got better. Still don't understand the engineering!! But one lesson is that the phone reps are really helpful!