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Profile picture for bandorino @bandorino

Hello! I was officially diagnosed with PMR on March 17 this year. Late January, started having burning pain around my knees and neck and shoulder pain and stiffness. Thought it was due to bad pillows and awkward sleeping positions. Spent a small fortune on specialty pillows. That didn’t help. Pain and stiffness got so bad I’d be in tears trying to get myself out of bed in the mornings. I’d had CMC surgery on my left nasal thumb joint December 11 and thought I must have somehow overcompensated for that hand being braced. I felt like thd TinMan unable to lift my arms, turn my head. I’d warm up heating pads and drape then around my shoulders and knees in the mornings. I was relieved to be able to put a name on what I was dealing with. At 67 yrs old, I was not wanting to chalk it up to “old age” as this seemed to come out of left field.

So now I’m seeing a Rheumatologist and on the 2nd week of a 28 day course of decreasing dosage of prednisone. (Started last week 20 mg daily. This week 15mg daily) Dr. also ordered a scrip for hydroquinone I think it’s called. Is this a standard routine or first line approach to the management of pain and stiffness?
I’ve noticed that the pain and stiffness had lessened a lot the first several days on the 20mg then seems to shift location.
I want to add that I’ve been wondering if stress from life changes could have triggered PMR.
My father in law died last October, my mom, who had Alzheimer’s and was in assisted living, fell last summer, broke her hip, and eventually died last November. I’d had the thumb surgery early December, my sister slipped on black ice and broke her hip after that. Then in mid January I had to have dental surgery! Everything everywhere all at once!

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Replies to "Hello! I was officially diagnosed with PMR on March 17 this year. Late January, started having..."

Welcome @bandorino, Sorry to hear you joined the PMR club. It's not a lot of fun dealing with the different symptoms but you will find a lot of support here on Connect. I do think stress can play a part in the disease but each of us are different when it comes to dealing with the pain. My Mayo rheumatologist was great at working with me on a tapering schedule and suggested I keep a daily journal of my prednisone dose and my level of pain when I woke up each morning before taking my prednisone dose for the day. This allowed me to adjust my tapering schedule if needed to control the pain. There are many different discussions in the PMR support group that you may find helpful. Here's a link that lists the discussions in the PMR group related to "stress" - https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/.