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Scheduled for cystectomy with ileal conduit: What can I expect?
Bladder Cancer | Last Active: 12 hours ago | Replies (10)Comment receiving replies
@ken17
Hi, Ken. My hospital starts folks on Coloplast, but that simply didn't work for me---couldn't get a good seal. Thought it was operator error. But the ostomy nurse tried a Hollister CeraPlus one piece bag and it worked perfectly. I can easily go 7 days, with only the appliance---no rings, barriers, powder, or skin protector.
I forgot to mention in my earlier post that through it all, I experienced no pain whatsoever. A friend who had an illiostomy at about the same time has really suffered, but this was blessedly painfree.
Replies to "@ken17 Hi, Ken. My hospital starts folks on Coloplast, but that simply didn't work for me---couldn't..."
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@annedallas
Thanks, Anne. I’m trying to get all the information I can before my cystectomy in May. The Hollister bag sounds great. I’m also pleased that you came through all of this with no pain. Was your surgery open or robotic assisted? My surgeon, Dr Tyson, at Phoenix Mayo, prefers open and I won’t argue. He seems to feel that recovery is not significantly different either way.