Male with neurogenic bladder: what are my options?

Posted by 2will2 @2will2, Mar 5 12:46pm

I’ve been diagnosed with a neurogenic bladder. I’ve been presented two options one self catheterization and the second supra surgery. I’m frightened of the whole situation. Who has experience with these two options?

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@windrider354
Well, when writer thank you for the information. I have this fully gathered in me since December. I don’t mind it. It’s become a way of life. I empty the bag just before I get in bed at 11:30 and I emptied it again when I get out of bed at 6 AM, it’s usually around 900. During the course of the day I emptied it when it seems to be getting an all kind of heavy you know or uncomfortable I should say for me to bounce around with it. I am due to get a special bladder test next week to see if my bladder is expelling anything which I don’t think it is. Then in two weeks I see the urologist to discuss possibly long-term. I certainly wouldn’t mind doing this long-term I feel comfortable with it. I’m used to it, and my life has adjusted to it. I will be honest with you. I am frightened and scared to do the self catheterization when I see I have to self authorize and stick that tube into my penis and all the way up to my bladder 5 times a day. Truly, it scares me. Thank you for your information in anything else you might be able to share. I have a nice day.

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@2will2
Windrider,
Sorry it’s me again. You take any type of supplements like cranberry or other medications on a daily basis to help water off UTIs? Also, what about diet? Are there different foods or types of foods you do not eat because they aggravate the lining of the bladder or or the different foods that you do eat because they help word off UTIs? The tube that goes from Russia that goes from inside my penis to the stabilizer I wipe down every morning and evening with what it is called ready cleanse mental and Perineal, cleansing cloth. They did this when I was in the hospital and this is the type of wipe they use so I continue to do it. I do fine at times when I might call a little bit of residual buildup on the tube. I do clean up twice a day and the same thing with that type of cloth. I always make sure i wipe around the opening of my penis and the rest of my penis head. I’m concerned about UTIs and I try to do what I feel is best than what has been kind of recommended to me. Please if you have any hands or suggestions what do you think I might do or not do I really would appreciate them. Thank you.

REPLY
Profile picture for 2will2 @2will2

@2will2
Windrider,
Sorry it’s me again. You take any type of supplements like cranberry or other medications on a daily basis to help water off UTIs? Also, what about diet? Are there different foods or types of foods you do not eat because they aggravate the lining of the bladder or or the different foods that you do eat because they help word off UTIs? The tube that goes from Russia that goes from inside my penis to the stabilizer I wipe down every morning and evening with what it is called ready cleanse mental and Perineal, cleansing cloth. They did this when I was in the hospital and this is the type of wipe they use so I continue to do it. I do fine at times when I might call a little bit of residual buildup on the tube. I do clean up twice a day and the same thing with that type of cloth. I always make sure i wipe around the opening of my penis and the rest of my penis head. I’m concerned about UTIs and I try to do what I feel is best than what has been kind of recommended to me. Please if you have any hands or suggestions what do you think I might do or not do I really would appreciate them. Thank you.

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@2will2 I do drink a little pure, cranberry juice (not cranberry drink) or take cranberry pills twice a day. i’m not sure that there’s any scientific evidence for this, but keeping the urine acidic makes sense to me. There is normally a little bit of discharge from the urethra during the day, but it cleans up easily in the shower in the morning. I use a valve instead of a leg bag during the day (actually at night too) just because it’s more comfortable and I can wear shorts, etc.
Please let me know if I can answer any more questions. And good luck to you.

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