Looking for others that are or have received Pluvicto

Posted by ewatson201 @ewatson201, 1 day ago

Looking for others who have used Pluvicto treatment for Stage 4 Prostate Cancer.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

My oncologist, whom I have had general reservations about, recently mentioned Pluvicto, as a treatment opposed to chemo. He told me he had seen an ad for it (who hasn't seen an ad, if you watch cable TV). That's all I have right now, ewatson, but best of luck.

REPLY
Profile picture for johnnyw @johnnyw

My oncologist, whom I have had general reservations about, recently mentioned Pluvicto, as a treatment opposed to chemo. He told me he had seen an ad for it (who hasn't seen an ad, if you watch cable TV). That's all I have right now, ewatson, but best of luck.

Jump to this post

@johnnyw
Thanks

REPLY

Some people have some major side effects from Pluvicto, most don’t. I have heard at least 5 people talk about their experience, In some cases they had to have more time between doses because of the side effects.

I saw a webinar where they discussed a person who lit up the Pet scan With metastasis from head to Legs. He had one Pluvicto Treatment and it almost cleared his pet scan, But his side effects were so bad that he could not take any more treatments

Be aware that it works really well for 33% of people OK for 33% of people and not at all for 33% of people.
If you have certain genetic issues, either hereditary or somatic, it can affect how well Pluvicto Works. You can ask for a somatic test before doing Pluvicto To find out if you’ve got Genetic changes Due to the cancer.

If you have BRCA2 or ATM It seems to work better. If you have RB1, PTEN or TP53 They are Pluvicto resistant.

Comments from other people that have had it.
https://connect.mayoclinic.org/comment/1380711/
https://connect.mayoclinic.org/discussion/can-anyone-share-their-experience-with-pluvicto/

REPLY

There are many, many posts on this site from other men who have gotten Pluvicto treatments or from their caregivers. They appear in different threads and are too numerous to repeat them here. Just do a search for "Pluvicto" at the very top of the page and relevant posts should come up.

REPLY
Profile picture for ewatson201 @ewatson201

Thanks I'm new here

Jump to this post

@ewatson201 No need to apologize--we were all new here once. 🙂 Please don't hesitate to ask questions, because there are many helpful people with lots of experience with prostate cancer and its treatments on this forum.

REPLY

My friend was put on Pluvicto awhile back. He said it is the best he has felt in 4 years. Only downside is he has to stay isolated for a week after his treatment because of the radioactivity. Best wishes!

REPLY

Here’s a good primer on Pluvicto (in language even I can understand!) —> Dr. Johnson (of Mayo Clinic) talks about scans in his presentation, starting with the scans we’ve all heard about (MRI, bone, & CT scans), and then going into detail about PSMA PET scans and Pluvicto: https://youtu.be/JoJomACA5UM

REPLY
Please sign in or register to post a reply.