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betsyhase avatar

Prednisone tapering

Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (6)

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Profile picture for John, Volunteer Mentor @johnbishop

@betsyhase, It seems like you are fairly early in your diagnosis and treatment of PMR. For both of my occurrences of PMR I my starting dose was 20 mg prednisone and usually within an hour or so of taking my dose, I was relatively pain free (less than 1 on my personal pain scale of 0 to 10) and quite a bit of the time was at 0 pain. Everyone is different and tapering can be a challenge. Some doctors do want to get you off of prednisone as soon as possible but I don't think there is a set rule for everyone. My rheumatologist had me keep a daily journal of my level of pain when I woke up in the morning and the dosage for that day. The main reason was if my pain level when I woke up was more than what I considered acceptable (less than 2) then he told me I should delay my taper for a few days when it was time to taper or possibly increase the dosage half of my previous taper down so that I was still making progress with my tapering schedule.

You might find this discussion by @dadcue helpful.
-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/
It sounds like the treatment is not controlling your pain very well. There may be other treatments that might also help. Have you discussed it with your doctor or rheumatologist?

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Replies to "@betsyhase, It seems like you are fairly early in your diagnosis and treatment of PMR. For..."

@johnbishop
Thanks for your detailed reply. I guess in the beginning I was so glad for any relief and at the same time, fearful of taking Prednisone. I guess I will have to wait until after my next blood test before I can get my PCP to listen. At this time I am on a wait list for a Rhumatologist. There are very few in our area.