@itsmeagain thank you so much for sharing . . . I have various autoimmune conditions but am starting to show more neurologic signs (tremors, weakness, hyperreflexia). Rheumatologist is concerned that I am pre-something neurologic and was thinking spinal tap for me, but I now have a clot in my brain so coming off blood thinners to do the spinal tap isn't on the cards.

Do you mind further sharing whether there were other tests that you did that confirmed the CIDP or were they all negative and it was finally the spinal tap that definitively diagnosed it? I have had 6 brain MRI's in the last few months, 4 sets of neurologists, 2 teams of MS specialists and they all concur it's not MS and it's autoimmune in nature . . . but nobody is quite sure what is going on right now. My rheumatologist believes something is brewing it's just early on enough not to show on imaging. I'm so frustrated 🙁