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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: 2 days ago | Replies (47)

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Profile picture for tkmoyer3 @tkmoyer3

@santosha
Well, I thought I’d give an update. I was starting to have mild headache in different spots of my head, a couple times a flash of white on the side that was like a second and eye lid twitching. When I had my follow up. The eeg was very active on the right side due to the surgery. Which didn’t surprise the doctor due to, again, the surgery. The MRI turned out good. My medication was increased for the evening only due to what I stated already. Since it was a week from my mentrual cycle. They believe that was the cause. The increase helped take the twitching away but not during the day. Especially now that the cycle is over. I have a follow up at the end of April but I believe I may have to call again. This is a weird feeling with the eye and the other eye will only do that if I close my eye and say I roll my eyes around and it’ll do it slightly. I’m not sure if this is just a side effect from the med or healing process from the surgery. In time I suppose I’ll see.

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Replies to "@santosha Well, I thought I’d give an update. I was starting to have mild headache in..."

@tkmoyer3 , Good Morning
Thank you so much for the update! I'm happy to hear that your MRI came back good and that increasing your medication has helped with the symptoms you've been having.
Menstrual cycles are a well-known trigger for seizures in women — and one of mine too. Thankfully, my doctor and gynecologist decided to put me on a specific birth control pill with no pausing for every six months, and it has significantly reduced my menstrual-related seizures.
I'm sharing a couple of links with more information on seizures triggered by the menstrual cycle. They might be interesting to you.
Menstruation as a Seizure Trigger - Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-triggers/menstruation
Basics about Catamenial Epilepsy - Epilepsy Foundation
https://www.epilepsy.com/stories/basics-about-catamenial-epilepsy
Has your doctor spoken with your gynecologist to look for ways to reduce those seizures? How much was the evening dose increased, and how are you feeling on it? Any additional side effects?
Chris

@tkmoyer3 Wishing you the best, as well. We'll look forward to any updates you feel comfortable stating. I personally believe that all who particate on our support group feel the same way.