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I started brensocatib 25 mg last Sept. About 2 months ago I noticed I was coughing up more sputum while doing airway clearance with 7% saline (which I do morning and evening). At my most recent visit to NJH last month, my CT scan showed improvement for the very first time in over 3 years. Even I could see the difference on the scan! I'm still positive for MAC but my pulmonary function test remains good (ie, "normal", per my doc). I don't know if my bacterial load is less or the same but Doc said that what matters at this point is how I'm feeling overall. So I'm still in the watch-and-wait phase. No antibiotics. No exacerbations.
Bottom line, I think the brensocatib is working! My skin has some new rough patches but that
is about it for the side effects. Yay!
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@coffcoff So glad you posted your results on the Brensocatib/Brinsupri.
I am waiting a bit before going on the Brinsupri while I stay on the watch-and-wait begun in Oct. 2023 at NJH. The intercellular I have appears to be down in load since then, Oct. 2023, with sputum tests indicating no colonies showing and no plus (+) number given recently. My last C Scan this past month showed improvement in all areas.
As with yourself no exacerbation, ever, and no anti-biotics started.
Love your "last C Scan also showed improvement."
For me it is just the need to clear nearly constantly the mucus. I realize that is better than not being able to clear but so time consuming and disappointing for various reasons.
I will look forward to hearing again, down the line, about how you are doing.
Barbara