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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: Jul 22 7:07am | Replies (172)Comment receiving replies
All the doctors, 3 oncologist and a surgeon believe it's too risky. I had some major remodeling done in my abdomen. But the main reason is there are other hot spots that show up on my Dototate 68 scan so most likely it has spread and at 65 it probably is not worth the risk. I am on Lanreotide injections and currently playing for a draw. Praying for a cure like a lot of us. Research, trials and more testing. Cancer is classified known only to nature and God. But your question was spot on. Take care.
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@doonman
I listened to a seminar from 2021 about NETs. One part struck me as being strange because it said "surgical removal" was the first treatment option for a NET. Surgical removal was contingent on the NET being localized and hasn't spread. For emphasis, it said the second treatment option was also surgical removal.
My primary NET is the distal ileum and localized but it has spread to 2 nearby lymph nodes in the mesentery. Everything suggests the surgical option will be recommended to me next week.
May I ask how much "remodeling" of my abdomen might be done? I'm leaning toward "playing for a draw" and just being treated medically. I currently don't have any symptoms that bother me. The thought of having abdominal surgery really bothers me!