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Started PRRT treatment: Anyone experience tumor markers increasing?
Neuroendocrine Tumors (NETs) | Last Active: Apr 12 8:18am | Replies (27)Comment receiving replies
@kevinmonroemi thank you for sharing.
I have functional Gastrinoma PNET at head of pancreas removed in May 2020. Since July 2024, has been on 3 monthly MRI and blood tests. Twice CT scans, twiceGA68 PET scans, ultrasound but not lighted up. Last MRI in Feb showed soft tissues at the staples between pancreas & small intestines where it’s impossible to reach with endoscopy. Hence a multiphasic CT was ordered in Mar 26 & unsure if it’s scar or lesion. But my Gastrin level from 1300 down to 656 then up 959 in Feb 26. No treatment is given except for 80mg Esomeprazole to manage the high Gastrin level. Next Blood tests & MRI scheduled in early May 26.
My oncologist said would order Octreotide if Gastrin level hit 1500.
May I know if you are still on PPI? Were you taking PPI when your level went down to 200? What is SBRT?
Replies to "@kevinmonroemi thank you for sharing. I have functional Gastrinoma PNET at head of pancreas removed in..."
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@jessie59 I take esomeprazole 3 times daily Pepcid twice daily. Also take sultanate up to 4 times daily. SBRT is pinpoint high dose proton beam radiation. I will be getting 3 -5 treatments every other day it was an easy treatment last time. Can’t see or feel any of it. MRI 3 months after wil let us know if it worked. It’s strange because sometimes side effects don’t show up 3-6 months later. Not sure I had any but I am very tired lately. I also have primary in the head of the pancreas. I had severe diarrhea until I started lanreotide. Do you have any symptoms for the Gastrin? What is your ki-67 do you have a multidisciplinary team?