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Inhaled Amikacin and Clofazimine
MAC & Bronchiectasis | Last Active: 2 days ago | Replies (26)Comment receiving replies
@notnancy88
I will be starting with the addition of Clofazimine within the next couple weeks. Current treatment is Arikayce inhaled and Nuzyra. I stopped taking Linezolid due to neuropathy in both feet.
Have you had any additional side effects of Clofazimine? Due to it being a clinical trial, my Infectious Disease Dr instructed me to report any side effects as soon as possible and said that I can withdraw from the drug trial if not tolerating it. I will need an EKG monthly and continued labs.
Best wishes for improved health.
Replies to "@notnancy88 I will be starting with the addition of Clofazimine within the next couple weeks. Current..."
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@janetannfaust to my knowledge, the only side effect I have from the clofazamine is a tan and all of the freckles on my face have popped and are more noticeable. I am very fair skinned to begin with. I split my dosing up. I take one clofazamine and one half of the linezolid at Noon and the other half of the dose at night. I am sticking with the linezolid since my PCP calls it a great heavy hitter. I only have a slight bit of neuropathy in the bottom of my right Halux. I can live with that.
On Friday, I will have my yearly Chest CT and a complete audiology checkup. I have worn prescribed VA hearing aids since 2015 - service related disability. The Arikayce makes it worse.
I have labs also. My February EKG did not indicate a heart block. I have never been on Nuzyra.
I feel I am doing better with the longer daylight and warmer weather. I am able to get out and about more.