← Return to Antisynthetase or myositis support groups?
DiscussionAntisynthetase or myositis support groups?
Autoimmune Diseases | Last Active: 21 hours ago | Replies (8)Comment receiving replies
Replies to "Greetings! just diagnosed with this on Monday. Would like to connect with others specifically about this…FB..."
Connect

@cohera hello, thanks for the reply. I hope you are doing well. My doctors first suspected lupus, and sjogrens as well, then autoimmune hepatitis, then they ruled everything out and told me to talk to my endocrinologist because my thyroid levels were fluctuating from 0.01 to 12.0 within a month. I got frustrated and insisted on a referral to Mayo. Thank goodness I did! My rheumatologist immediately pointed to myositis. I don’t have ILD but I think I was diagnosed really early. Fingers crossed it doesn’t develop. I do have persistent cough. I’ve been wondering about post covid… I’m going to see the aerospace program and I was told to ask them. I had Covid 4-5 times. I did have lots of stress in my life right before it manifested. So, who knows. This whole thing is a full time mystery,