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@blm1007blm1007 Thank you for sharing.
Diagnosed with a positive for MAC in Dec 2025, I definitely 100% wanted to go to NJH. However, after my second culture, which was negative for MAC from the bronchoscopy in January 2026, I am not sure it is worth going.
Would you still go to NJH with a negative MAC culture? Will it be worth my time and money to go still?
Replies to "@blm1007blm1007 Thank you for sharing. Diagnosed with a positive for MAC in Dec 2025, I definitely..."
@mtinderscott2626 Have you ever made a decision to not do something and then regretted it because you didn't do it???
You have been told and referred to NJH. You now have three people on the site implying and suggesting for you to go. You have BE, Bronchiectasis and sometimes it feels as if the the infection itself is just down deep and hiding and then flares up again. I say that because some of us get a positive result one month and a negative result next month and then back to positive.
I'm a believer in 'erring on the side of caution'.
Is it worth the time and money.....the reality is, as you know, you will never know unless to go.
I understand what you are going through in the decision making process.
Hope and want you to find your way to making the best and right decision for yourself.
Barbara
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@mtinderscott2626 I would go. They would evaluate you as a whole case, compare tests, tell you how to proceed. One negative test you had does mnot necessarily mean MAC negative. I would go to have a back up and a good diagnosis