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Undiagnosed and unsure if it's all in my head

Brain & Nervous System | Last Active: Apr 6 2:39pm | Replies (44)

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@wisco50

I live in georgia. Yes, they did say this. I got rejected at mayo and I am a duke patient currently. My mom was lots of knowledge due to her own condition, but it's not going anywhere pretty much. The duke is looking some at the possibility of chiari, but they think I wouldn't likely have sudden symptoms like this.

I have a family of doctors, so my mom asks them for advice as well. Thank you, I will keep def keep updated.

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Replies to "@wisco50 I live in georgia. Yes, they did say this. I got rejected at mayo and..."

@grass16
Curious, did Mayo say why they rejected you?
I will say the squeaky wheel gets a lot more attention. If you have medical people in your family they may know what words to “use” when appealing things. It can make a difference at times. I just got very forceful. I was told “do not have any more surgery, it won’t help and could make things worse” yeah, worse, ha, was taking morphine and hydrocodone daily. My kids’ dad (my ex) committed suicide so that was not an option for me. I was desperate and in constant pain.