💜 Surviving Pancreatic Cancer for 3 years and beyond 💜

Very nice reading your post. I too am a 7 + year Stage 4 Pancreatic Cancer survivor. I am taking Lynparza (PARP Inhibitor) and its been working for me for the last 6 years after a 600 hours of Chemo when I was originally diagnosed. I get checked every 27 days and my latest Tumor Marker was at 7 last week.

Wishing you all hope and prayers!

Very nice reading your post. I too am a 7 + year Stage 4 Pancreatic Cancer survivor. I am taking Lynparza (PARP Inhibitor) and its been working for me for the last 6 years after a 600 hours of Chemo when I was originally diagnosed. I get checked every 27 days and my latest Tumor Marker was at 7 last week.

@pkappy
Hi
what was your chemo?
that means 100 hours a year or 4 hours every 2 weeks
Andre

@pkappy Since you were prescribed Lynparza, I was wondering if you have either the BRCA 1 or 2 mutation? And is your pancreatic cancer an Acinar cell type? My understanding Lynparza is it targets the BRCA 1 or 2 mutations and works with Acinar cell pancreatic cancer better than the ductal cell type. I'm coming up on 3 yr. survival with acinar cell pancreatic cancer and Lynparza was not effective.

@pkappy Since you were prescribed Lynparza, I was wondering if you have either the BRCA 1 or 2 mutation? And is your pancreatic cancer an Acinar cell type? My understanding Lynparza is it targets the BRCA 1 or 2 mutations and works with Acinar cell pancreatic cancer better than the ductal cell type. I'm coming up on 3 yr. survival with acinar cell pancreatic cancer and Lynparza was not effective.

@pcand52
it was 50 hours every 2 weeks for 7 months of Folfirnox. after that i have been taking a pill called lynparza every day 6 pills a day since 2019

I also found out I had KRAS G12D after my lung nodule biopsy. Which trial are you doing?

Chemo was terrifying for me before starting, but manageable. Since you are so active. I would recommend walking every single day. Even when you feel like you have no strength. I remember going from running 3miles to just slowly walking back and forth in front of my house with my chemo pump in a bag. Had to stay close to the bathroom. Haha. The desire to see my kids grow up gives me strength I didnt even know I could muster. Hang in there! 💜

@56pan

Yes. I have BRACA 1. I'm not sure about the type. I'm sorry it did not work for you but 3 years is great so something is working for you. I think having the BRACA gene really saved my life since their is a specific target medicine fore this. I should have known, but I never thought about it, but everyone on my mothers side (her 3 sisters and 4 brothers and their children all had cancer of some sort or another. I just never paid it much mind until I was diagnosed at 56. It stopws with me since I have no children.

@pkappy After being accepted for a clinical trial at the NIH in MD due to my original DNA test showed I had the BRCA 2 mutation and acinar cell cancer, they put me on Olaparib (Lynparza) for 3 months and it was not effective. So, I was released from the trial. Back home, I went to the local VA med. ctr. and their oncology dept. for treatment. The onc. doc there was very good and couldn't understand why the Olaparib had not been effective, as with my BRCA 2 mutation and acinar cell cancer, it should have been. He ordered another DNA test of tissue from a biopsy and it showed I'd had a reverse BRCA 2 mutation. Told me it was very rare, but happens. Put me on Gemcitibine/Abraxane and it did some good. I'm on a chemo break now, and the cancer has started to metastasize again. But I can see why Lynparza is working for you it's good to know it is actually effective with the BRCA 2 mutation. Thank you for your time and post.