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Sjogren's Question

Autoimmune Diseases | Last Active: 4 days ago | Replies (57)

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@issy58
I have Sjogren's with peripheral and autonomic neuropathy and experience the dry eyes, mouth, and skin. There are drugs that may help. I took 5mg/day of pilocarpine for a couple years and recently switched to 30mg/day of cevimeline. In my experience, they do seem to help a little. The pilocarpine caused me to sweat profusely for 15-20 minutes about an hour after taking it, thus the switch to cevimeline. I haven't noticed any other side effects. Although the palliative effect of these drugs has not been dramatic for me, maybe others have a different experience. And maybe just a little better is a good thing.

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Replies to "@issy58 I have Sjogren's with peripheral and autonomic neuropathy and experience the dry eyes, mouth, and..."

@jrkittel ok thank you I’ll see what the rheumatologist says when I go see her.

@jrkittel have you experienced constapation too?.it all seem to start with the constipation, then escalated from there.