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Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (33)
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Hi and thank you, I do keep a daily log of pain level and dosage. I am splitting my dosage, 6AM and 6PM. My understanding is the pred stays in your system 16-22 hours. It's half life is about 5 hours. So presently I do 9mg in the AM and 4mg in the PM. My Rheumy is fairly stringent and doesn't really understand that each patient is different. One rule may not fit all.
Replies to "Hi and thank you, I do keep a daily log of pain level and dosage. I..."
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@76ttop
I'm fairly new to this PMR life but I've noticed a few things. Few of us present with the so called classic symptoms which makes diagnosis difficult. Our PMR seems to react to different doses of prednisone. It can be difficult to describe the pain we're feeling. Doctors don't understand all the symptoms. Whether that's because some of us have more than one thing going on or because it affects each of us different, who knows. Doctors don't understand why 10mg prednisone works for some but it takes 40mg for others. Doctors definitely do not understand the pain levels we feel. I can't explain why at times it's difficult to even lift my cup of coffee or why I can't hold my phone long enough to finish reading a news article. I don't blame my doctor because my symptoms, pain and prednisone reaction are difficult to understand. I'm grateful that he's trying and that he's concerned with the known side effects of prednisone. I feel them. PMR is not a high profile disorder. Pharmaceuticals are not looking for a magic cure that will make them a fortune. As I'm writing this I can feel the pain building up in my neck and shoulders and I don't understand it. I'm fairly certain that I have PMR plus something else. Only time will tell.