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Many neuropathy issues, so why so few doctors who know?

Neuropathy | Last Active: Apr 6 2:30pm | Replies (51)

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@ccchang
Hello,
Sounds like you are doing the best you can. I too have been taking B-12 supplements for a year and half along with vitamin D. It's great that your walk and stride is improving. That's a great sign. I can't make suggestions for you, but for myself I'm going to work more on physical therapy exercises and go to the gym every day Mon through Fri. I do light weights M,W,F and do stairclimber and stationary cycling Tue/Thur. Nothing heavy. But, I think the consistency and optimism matter.

I have a program I do at home. It's a mix of short exercises and foot stimulation I obtained from different sources. I'll share it with you here:

For each of these I count up to 20 or 30. All of this is barefoot.

- Ball rolls under foot. It's a plastic baseball-sized ball with dimples on it for the foot massage.
- Toe taps.
- Ankle windshield wiper foot swings and rotations. (Both feet at the same time.)
- Cross-leg over the knee and twirl the ankle.
- Hamstring stretch. I do this lightly and carefully because it can easily cause my foot to tingle which means the nerve is being overly aggravated.
- Stand and bend one knee so foot is kicked behind, hold there, and pump the ankle. Then switch for other leg.
- Same as the last one but pump only once and go back and forth kicking behind between legs.
- Stand and do toe raise to strengthen the calves and then do the opposite where you lift your front foot balancing on your heals. I do all of this on a half-inch foam pad to make it bearable.
- Marching in place
- Single leg balance, such as balancing on one foot with the other in front, to the side, and to the back. I do this on the thick foam pad too which adds to the challenge.
- Ball role under foot again.
- Towel toe crunches. Place towel on the floor, place feet side by side on it. Crunch the toes to pull towel in by the toes. You will need to slide the towel back every 5-6 crunches and start again.
- Foam pad toe crunches. I fold my 1/2 inch foam pad over itself and stand on the corner edges to the toes overhang and then crunch my toes against the edges.
- Blue band pulls. I wrap a band around the leg of a heavy table and around the upper part of the foot and pull backwards to strengthen the muscles that lifts the foot up. It's good for people who have foot drop issues.

Now for the stimulation methods. None of this is proven, but there are have been some small studies. I found this using AI. Unfortunately, the medical industry is not investing in this kind of research for never rehabilitation, but it's something I do most every day.

The idea is to train the brain with new sensations.

- Neurologist tuning fork. Vibrate the end of the fork on the different parts of the foot.
- Electric sonic tooth brush. I keep the plastic cap on the brush and use the plastic cap to vibrate against different part of the underfoot where I have less sensitivity. The way to do this is to close your eyes, do it on the good foot, and then do it on the bad foot and when doing it there image how it felt on your good foot. In theory, it's to train your brain and nerve system. This is a bit challenging being alone because of the body angles. It would be better if someone could help.
- Back scratcher brush under foot. I bought two of them and stick the handles under the front chair legs with the brush facing up to give it stability. Then close the eyes and slide the bottom of the good foot over the brush and the bad foot over the other brush and imaging the good foot feeling when doing the bad foot brush. Do this back and forth.
- Slide the foot over something soft, like a plush soft cloth.
- I have a bucket of rice and still the bad foot in it and swash the foot around, flexing the toes in the rice. The idea is more different sensations.
- I have two other bucks, one with cold water and the other with water hot enough but not too hot that it burns. Place my bad foot in the cold bucket for 5-10 seconds. Then over to the hot buck for 5-10 seconds then back again, doing it multiple times.

It all sounds crazy and probably is, but I have nothing else to try.
Feel free to add more ideas! Thanks!

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Replies to "@ccchang Hello, Sounds like you are doing the best you can. I too have been taking..."

@pauldandurand Wow, this list is so awesome! Many of my exercises sounds similar to yours. But some of your ideas are new, so I will try, thank you! I also try to go outside daily to walk or jump barefoot on the grass and then I come in, scrub my feet with soap and a horsehair brush, then soak in magnesium flakes for about 20 minutes. Sometimes I lie on a beach towel outside and do my stretches and exercises. I think fresh air and sun are good for us. Since my foot is numb, it's flat and I've grown a bunion, so I also bought toe separators. I recently took a trip and with all the walking/steps, one night I removed my shoes and saw that my socks were bloody. Two toes on my right foot were bleeding because they push forward into my shoe. Like you though, I continue to push forward with research, exercises and prayer! Wishing the best for you, me and everyone else in this forum.