Spinal Stimulator removal after nine years: Concerned

I have everything you're describing, it can be mentally as difficult as it is physically. Exercise and stretching...LOTS of stretching are the ONLY thing that actually helps when the meds don't seem to work as well. I began taking marijuana for the muscle relaxant effect and for sleep but as with anything, your body gets used to it and it doesn't work so well. I stopped taking it every day and only later at night closer to bed time when I really need .
Whatever you CAN do to move your body and get blood flowing, do it!
A good Physical Therapist can help you learn how to move and work your muscles. As we age everything is only going to get worse, so keep your body strong as possible.

I kept getting a dull ache feeling in my legs and when I feel it I can’t put pressure on my legs! While I was hospitals having my spine stimulator removed I noticed wearing a hospital gown I didn’t feel it. I put my sweats on and the pain came back. Anything touching about 2” above the but crack on either side causing test icles, anal , head of the penis, temple head aches and it all depends which side is being touched. So much for getting to sleep in a bed again 3 years In a recliner and would love to stretch out in a bed. Even during water therapy it hurt my back from the pressure!
My stimulator surgeon said he’s never heard of my symptoms in the 20 plus years he’s been doing surgery so he finally agreed to send me to another Neurologist to explain to me what’s going on !!!

I am so sorry you are experiencing this. I don’t have a solution but hope your new neurologist will or possibly someone on this site will have suggestions. Keep us posted. Hope you find answers and comfort.

@sbtheplumber1 I went to the ER after my assisted fall I lowered my self to my knee on the last step getting out of the pool but it pulled up on my shoulder which irritated the paddles of the stimulator. After causing an elderly lady to fall that tried helping me is frustrating knowing she was recovering from a recent hip surgery and almost ready to drive again. Now it’s been about a month and she hadn’t come back yet. With the surgeon ignoring my cry for help I went to the ER that Friday and the ER ordered imaging because my arm and face was going numb, paddle area tender radiating pain from it. They even had in their notes they discussed admitting me for possible stroke symptoms, Cauda Equina, possible infection then they spoke to surgeon whom I’ve not seen since June 12, 2025 and he told them no it’s not clinically necessary so they discharged me . Then 2 days later taken from church by ambulance because my left leg and foot went numb below my knee . My local hospital done X-rays but don’t have neuro surgeons so the transferred me back to the hospital my surgeon was at . Another Neurosurgeon agreed to accept me there then my surgeon took over I demanded imaging feeling like he was up to something no good. There was changes my paddles were placed at T6/7 but previous images showed them at T7/8 . The surgeon came in the next day and said I have every right to dismiss you right now non of your symptoms are related to the stimulator ! I finally agreed to let him remove the stimulator Friday the 13th and the nurse I had issues with didn’t tell day shift to hold the Lovenox shot for blood clots so I didn’t have surgery until Monday ! Which after the paddles were removed the numbness to my arms was gone that he promised had nothing to do with my paddles. But the nerves on the surface of my back got worse . Now I can’t go in public unless I’m going to the doctors office because clothing has become a problem