← Return to neuro endocrine tumors in small bowel, omentum, on ovaries, appendix

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@matt76
Hi Matt and welcome to Mayo Connect. I know what those pains can feel like. They can be horrible. If you don't mind, I'd like to ask you a few questions to better understand her issues? What tests/scans led to the diagnosis of the neuroendocrine tumors... NETs for short? Were you told why the tumors are inoperable? What kind of doctor informed you of this? Is there anything else the doctor told you specifically about NETs? Thank you.

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Replies to "@matt76 Hi Matt and welcome to Mayo Connect. I know what those pains can feel like...."

@tomrennie she has had pain on and off for over 3 years. Multiple CTs and then an MRE lead to a diagnosis of intermittent small bowel obstruction. She underwent surgery on March 19, 2026 for the bowel resection and they found multiple tumors as I described. The biopsies came back as neuro endocrine. The general surgeon told us surgery was not an option due to the scattering of small tumors throughout the blood supply for the small bowel (omentum). There were tumors involving appendix, small bowel, omentum, and ovaries that they have mentioned. She has begin to have night sweats and her pain and food intolerance have been increasing for the past 6 weeks and she has basically no incision pain. She now has baseline pain that disrupts basic activities and her weight loss is at a point that is becoming alarming.