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Pleomorphic xanthoastrocytoma tumor (Pxa): help

Brain Tumor | Last Active: Dec 9, 2023 | Replies (132)
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@kodabear

Thanks David! I appreciate your sharing your daughter’s experiences. It’s makes me worry a little less with her occasional headaches. Her last one which was a couple of days ago was the worst one with vomiting and a sensitive scalp, but it passed. She used Tylenol and it helped enough. Opposite of your daughter’s situation, My wife’s tumor was in her left temporal Lobe. She also uses some use of the R side limbs as well but can still walk. Her hand loses maybe 30-40% Functionality. Question. Did your daughter have any problems with her skull cap from the surgeries? Infections, etc.

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Replies to "Thanks David! I appreciate your sharing your daughter’s experiences. It’s makes me worry a little less..."
dgruk | @dgruk | May 27, 2020

kodabear, we had no problems with her head bandaging after drain removal, other than perhaps perhaps a bit of wound 'weeping'. We were advised regular and meticulous changing is important. Sickness, usually accompanied or preceded by a headache, was a feature immediately after operations, reducing over a couple of months. She still has more headaches than the average person, but not excessively so. ATB David.

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