kodabear, regarding headaches, we have found that they come and go. Other than when recovering from surgery (which for my daughter was another matter) we have found that headaches come and go for periods of a day to a few weeks here and there. Whilst one doesn't like to take too many pain killers, we have learned that this what they are there for, and nursing staff are usually most helpful in advising about their use. Regarding mobility, 3 months ago my daughter started getting reduced mobility in her L side. This was almost certainly due to the re-growth of the tumour which is in and around her Right Temporal Lobe (which controls the L side of the body). 6 weeks ago this had worsened to a relatively bad limp in her L leg (she could only walk say 200m) and her L arm had lost almost all mobility, pretty much just hanging. Perhaps different to your situation though was that she had/has full sensation, it's just that she was unable to move her L limbs normally. She then started some sessions, over video, with a physio who specialises in neurological impairment and this has worked well. If she had 100% mobility in her L side 3 months ago I would say this went down to about 20%, but it is now back up to about 50% and still improving week on week. It sounds like your situation is different (re the loss of sensation) but even so I would still recommend speaking to a neurological consultant or even to a neurological physio direct - I understand this is a common sort of problem they deal with. I hope that helps. All the best with it, David.