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MAC & Bronchiectasis | Last Active: Jun 1 11:42pm | Replies (38)
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@mtinderscott2626 If you can afford the time, travel, and cost, I think you should keep the appointment because NJH with give you the most thorough examination and information you can possibly get.
Here is why - you are relatively young, and in a high risk situation, so you need the best info possible.
Most NJH patients return home to follow with their local docs, and you could do the same - what you learn in Denver will hive you the confidence to follow with your current team, or the notion that you may need someone else.
Is thr current doc treating the pseudomonas? Have you been given any precautions to follow as you care for your horses?
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@sueinmn Yes, they put me on an antibiotic for the pseudomonas..............message from pt portal "It can be treated with antibiotics (typically first line would be an oral antibiotic such as ciprofloxacin or levofloxacin) given for 14 days +/- a period of inhaled antibiotics with the intent of eradication. I wanted to reach out and see how you were feeling and if you would be interested in proceeding with a course of antibiotic therapy. "
I completed the antibiotic, and I guess that is it unless my next sputum culture shows something. I have no clue as to whether the oral antibiotic has eradicated the Pseudomonas. The local pulmonary specialists have me on a saline inhaler, 3-7%. I asked about cutting grass, and I was told to wear a mask. Otherwise, I have not been given much detail on how to protect myself.