@rogo Interesting about your mother's cough. My mom had one too. Non-smoker who died of a not so common form of breast cancer (which her mother had as well) It presents on the outside of the nipple as a sore. My grandmother had dementia when she first showed signs. Her doctor told our family to just do nothing...let her die of it. As a family, we decided to get a radical done on her, and if she died on the operating table, that was how it should be. When my mother was diagnosed, she only had one removed. It came back after my father passed. She declined chemo until the very end. By then it was too late. Now my sister has consistently been coughing, and was diagnosed with possible COPD. She has a lot of scented candles in her home, which I have heard are dangerous. I really want her to be tested for possible NETs. I just know she will brush me off. It would be nice to know if anyone else in my family had NETs and was undiagnosed before it turned into what they eventually had. Again, I amazed at what you have been through !