← Return to Diagnosis Frustrated: How you were diagnosed with NETs?

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@nannybb
Hi. No, the breast cancer is not related to the NETs/DIPNECH. I actually had the lung symptoms for about 40 years and even asthma starting in childhood. Was the asthma just part of the DIPNECH, who knows? I have genetic mutations for breast cancer. The 50+ nodules were discovered in 2008 and breast cancer in 2013, the first time. They insisted on the lung biopsy in 2020 when my breast cancer returned to be sure they weren't related and that's when I was diagnosed with NETs/DIPNECH.

My gallstones were first seen on a CT scan back in 1999, so I had those long before octreotide. AI recently told me my gallstones were so large now, they are unlikely to cause a blockage. Sorry your surgeon was so flippant about removing your gallbladder as if that's a walk in the park.

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@californiazebra I know, right? I have had so many body parts altered or removed I'm thinking of changing my name. 🤣