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Pleomorphic xanthoastrocytoma tumor (Pxa): help

Brain Tumor | Last Active: Dec 9, 2023 | Replies (132)
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@jakejta

Hi Audra, hope you still follow this forum. My 23 year old son just had a PXA tumor removed. Waiting to get the moleculars back, so limited information at the moment. Would love to hear your experience and any advice or resources you would be willing to share. Thank you!

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Replies to "Hi Audra, hope you still follow this forum. My 23 year old son just had a..."
dgruk | @dgruk | May 13, 2020

jakejta, I have some experience similar to Audra, fingers crossed for your son's diagnosis. My daughter has had a Grade 3 PXA for 6 years and is in her 20s. She has had multiple operations, radio, chemo, targeted therapy and re-purposed drugs and is still with us albeit with relatively minor disability. When you know the situation I would be happy to share our experience if that would help. Best wishes, David.

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Colleen Young, Connect Director | @colleenyoung | May 19, 2020

Hi @jakejta, like @dgruk, I'd like to get an update about your son once you get the test results back after surgery. When do you expect to get them? How is your son doing post surgery?

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