I’m glad you found someone who understands nets. That’s actually the reason I went to memorial Sloan Kettering for a second opinion, as a world class cancer hospital. My lung tumors were found incidentally when I was having a scan of my heart. So the local cardiologist referred me to a local general pulmonologist, who didn’t seem concerned, but thought maybe it would be wise to do a biopsy. This was all so new to me, and Memorial Sloane Kettering is within easy reach for me, and with one phone call I had an appointment at the end of the week with them. Point of reference, it took me three months to get an appointment with the local pulmonologist. By the time I saw the MSK doctor, he had reviewed my scans and test results and already suspected it was nets, which I had never heard of. He’s very good. So I trust him to monitor it. The thing is with DIPNECH, you can’t remove all the lumps and bumps and tumorlets or you won’t have any lung left. But because the largest one lit up in the PET scan, and there were also two smaller tumors in the same lobe, he deemed it best to remove that lobe, and I’m glad he did. No lymph nodes were involved, it was typical, and he just watches for changes. I just wish I had a local pulmonologist who knew something about nets to ask questions etc. I have a scan coming up in early May so I’ll see how things are going. For sure if there are any changes, I would see someone else. But I think if there were any changes, my MSK doctor would refer me. The problem is finding a lung net specialist. I actually consider my MSK surgeon pretty much a net specialist, but his specialty in the field is oncology/surgery. There are more specialists for GI nets from what I understand.