@lmp71 hello I am so sorry I have not been on in a while. My world has been shattered and I am trying to cope. January 28,2019 I lost my daughter Danica this evil pxa tumor. Danica ran out of options and what medicines that have been known to help shrink these kind of tumors. Hers just got overly aggressive and took over. She had tumor all over by the time she was sent home on hospice and having swelling nausea and losing right side functioning since her tumor was on left and front. She was sent home from Oakland children’s hospital on hospice on a Friday which hospice was not coming till that following Monday so she had been sent home with a couple strong hard core pain medications that I had to give her since her headaches became consistent and very painful. By Sunday morning at 3am I had to make the decision to load her up with my other children husband and my good friend and her daughter that Danica has over for sleep over even in the pain and condition she was in and I was letting her do and have what ever she wanted knowing her days were numbered. We got to Oakland and they admitted her and started her on pain meds and asked what we wanted as in her being home after they get pain controlled to pass there or hospital and we picked hospital because of so many reason. First it’s where she had her care, they can control her pain and her comfort and team would be there with us. Danica fought 8 long days till she passed at 2:49am on January 28, 2019. It was the worse and long 7hrs of my life that I had to watch and go through due to her labor breathing and sounds and being so powerless and hit with reality that my baby was leaving me forever. Today I am still not emotionally ok. My 7 year old who’s been here in home and shared a room with her is having a hell of a time and he is in grieving therapy. My 19 year has checked out and became completely detached as well as I have. I have to drag my self and push to get through each day for my kids and it has taken its toll. My life with out her is hell and I can’t believe she is gone.