@rogo Wow...9 years! That is amazing. Can you share how it was detected and what your symptoms were at the time? I heard a podcast (?) yesterday where a doctor was speaking with a moderator on the number of cases of carcinoid tumors. He stated that they were thought to be uncommon, but in actuality, the percentages are going up. He believes this is because more people are having diagnostic testing, like CT scans for other issues and they are then seen as a secondary issue. He is a specialist in NETs and has also been involved in researching demographics for this type of cancer. It appears Asian countries have more of an occurrence, as an example, of rectal carcinoids. He does not know why. Diet was mentioned as a possibility as well has hereditary etc. He touched on the obvious. There are not many doctors, even surgeons, who know much about these tumors. One other really interesting fact was some NETs are found upon an autopsy, in fact, quite a few. So it seems there may be a good number of people walking around with Carcinoid cancers which will not be discovered until they have died.