← Return to Does reducing exposure to Mycobacteria ( NTM) work?

Discussion
Comment receiving replies
Profile picture for kahkej @kahkej

Hi, the mysteries of this condition baffle me. To make a long story short, I was prescribed nebulizing 2 x a day, flutter valve and azyithromyacin every other day. I do not have MAC. I switched my care to a bronchiecstatis clinic in Rochester, NY. I had a pulmonary function test (I was happy to finally get an PFT) and was told I had asthma along with mild bronchiecstatis. I was taken off the azyithromyacin (happy about that, as I was worried about antibiotic resistance) and the nebulizer and flutter valve. I was prescribed an Advair puffer for asthma. I asked about mask wearing for gardening and was told it was unnecessary. The other, younger doctor, however, surreptitiously indicated mask wearing while gardening is a good idea. I was also wondering about GERD as I have been getting pain under my ribs, which has woken me up at night (pain not due to coughing). Recently, my chest heaviness /burning has returned. I can never tell if I’m having a flare and need antibiotics (no fever and I don’t produce enough sputum to expel). I fear I’m turning into a neurotic hypochondriac! My previous pulmonologist’s nurse told me I didn’t look sick , when I felt very sick and had to beg for antibiotics. My next appointment with the bronchiecstatis specialty clinic is in a few weeks via telemedicine, due to distance.

Any advice, thoughts are very welcome. Thanks for allowing me to vent:)

Jump to this post


Replies to "Hi, the mysteries of this condition baffle me. To make a long story short, I was..."

@kahkej What percentage of saline do you nebulize? When were you diagnosed? Regarding burning in chest sounds like some variation of GERD. Trying a H2 blocker (Famotidine, aka Pepcid, Zantac 360) might help. Also stopping all food and drink 3 hours before sleep helps as does sleeping at an upright angle, for instance, on a wedge. Certain foods can trigger GERD and burning in chest. For me it's onions, a lot of garlic, and dark chocolate if I overdo.

This page describes symptoms of an exacerbation.
https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations