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Pleomorphic xanthoastrocytoma tumor (Pxa): help

Brain Tumor | Last Active: Dec 9, 2023 | Replies (132)

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@dgruk

@kodabear, I understand, it's tough and if our experience is anything to go by it just seems to remorselessly go on and on. This affects us all and I hope you have someone to properly talk things through with. Here in the UK there are counsellers who help - I have used this service and I am sure I am better for it. My daughter also found it re-assuring that someone was helping me because it at times I was reaching my limit. ATB David.

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Replies to "@kodabear, I understand, it's tough and if our experience is anything to go by it just..."

I definitely should find counselors. I feel like I am going to lose it soon. My wife is currently going through a tough time and it is really tough to watch helplessly. She had a craniotomy, then had to return to the hospital because of a bacteria infection. Another surgery and a few complications make this seem like a never ending battle. We have hope and a lot of great specialists working hard for us. Wishing a better happy new year for all of us!