← Return to Pleomorphic xanthoastrocytoma tumor (Pxa): help

Discussion

Pleomorphic xanthoastrocytoma tumor (Pxa): help

Brain Tumor | Last Active: Dec 9, 2023 | Replies (132)

Comment receiving replies
@kodabear

Thanks @dgruk. My wife just had her second surgery and removed all of it this time. Regression of coordination and inability to think clearly, but was ok. Now she has a bacterial infection from the surgery. It’s so hard!

Jump to this post


Replies to "Thanks @dgruk. My wife just had her second surgery and removed all of it this time...."

@kodabear, I understand, it's tough and if our experience is anything to go by it just seems to remorselessly go on and on. This affects us all and I hope you have someone to properly talk things through with. Here in the UK there are counsellers who help - I have used this service and I am sure I am better for it. My daughter also found it re-assuring that someone was helping me because it at times I was reaching my limit. ATB David.