← Return to I am 75 and have carcinoid tumors NET in lungs

Discussion
Comment receiving replies
Profile picture for jhhaas @jhhaas

@haelsky. I had RML robotic lobectomy at Memorial Sloan Kettering in NYC in 2023. They discovered it was nets through the bronchoscopy biopsy, but couldn’t tell until the surgery that it was typical net. My doctor there is a thoracic oncological surgeon who suspected nets and DIPNECH from the beginning. And that is who monitors me every six months with a CT scan and follow up visit. So far nothing has grown or changed postop in 2 1/2 years, thankfully, and my DIPNECH symptoms are not severe like some have, for example I don’t have the cough that often goes along with that. So I’m not sure I want to start a medication that might give me more symptoms to deal with. Since I am equidistant to New York and Philadelphia, I will probably at some point try to just see a net specialist in Philly for another opinion and evaluation.

Jump to this post


Replies to "@haelsky. I had RML robotic lobectomy at Memorial Sloan Kettering in NYC in 2023. They discovered..."

@jhhaas My surgeon and I talked about the possible side effects of being on the shots for NETs. He told me it is common to have problems with your gallbladder. I asked what happens then? He said, laughing, "I'll just remove it." I told my GP of that interaction, and SHE laughed and said, " That's just how surgeons think." I have had over 11 surgeries in my lifetime. I'm definitely going out of this world with less "inside" than I came into this world with. 🤣