Connect
← Return to I am 75 and have carcinoid tumors NET in lungs
Discussion
I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: May 8 8:12pm | Replies (128)Comment receiving replies
@nannybb I was diagnosed 9 years ago and thought the worst. I am now 73 . I am at Princess Margaret Hospital in Canada and assured they are one of the best with this. The doctors have assured me this type of cancer is very slow growing, rarely spreads and I will probably die from old age . I used to go for cat scans every 3 months , then every 6 months , now once a year , and a lung x ray between. I still have an occasional cough , and get out of breath walking up stairs but I can live with that . I hope they are right and I can continue on . Treatment is only necessary if the symptoms get worse , so I hope things stay the same. They tell me this is a very rare form of cancer , but one you can live with. They tell me it’s more of a condition that I have to live with. After my ct scans the word STABLE is my best friend.
Replies to "@nannybb I was diagnosed 9 years ago and thought the worst. I am now 73 ...."
@rogo
Are your scans with contrast ?
I was provided with the same information
@rogo
Are your CT scans with contrast and are they only of the chest?
Connect
@rogo Wow...9 years! That is amazing. Can you share how it was detected and what your symptoms were at the time? I heard a podcast (?) yesterday where a doctor was speaking with a moderator on the number of cases of carcinoid tumors. He stated that they were thought to be uncommon, but in actuality, the percentages are going up. He believes this is because more people are having diagnostic testing, like CT scans for other issues and they are then seen as a secondary issue. He is a specialist in NETs and has also been involved in researching demographics for this type of cancer. It appears Asian countries have more of an occurrence, as an example, of rectal carcinoids. He does not know why. Diet was mentioned as a possibility as well has hereditary etc. He touched on the obvious. There are not many doctors, even surgeons, who know much about these tumors. One other really interesting fact was some NETs are found upon an autopsy, in fact, quite a few. So it seems there may be a good number of people walking around with Carcinoid cancers which will not be discovered until they have died.