Hi all, my daughter is now going through a tough period after her recent major operation. As I might have said before we have some knowledge of targetted therapies so if your tumour, like my daughter's, has the BRAF 600E mutation please do ask about our experience. Also FYI with her oncologist's blessing, my daughter has just started on a treatment in parallel using Sativex (a licensed/approved cannabis based medicine more commonly used for MS sufferers) and CBD oil. The main reason for this is there is emerging evidence (showing promise, but not yet conclusive) that this may limit the growth of some tumours, or shrink them, particularly if taken in parallel with Temozolomide (which my daughetr is also on). By consensus there also seems little or no downsides plus in some cases it might also help with symptom management depending on your issues. Ref this we live in the UK and it was not easy to find how to do this and what to get, but we managed to get it prescribed formally by a doctor. I guess we'll never know whether it is effective or not, since she is on other meds in parallel, but we concluded it was worth trying. All the best to everyone, David.