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Sjogren's Question

Autoimmune Diseases | Last Active: 4 days ago | Replies (57)

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This all started when i hit menopause 12 years ago it gradually. It started with dry scalp then a few years after chronic dry eyes then years after dry Virginia, now just last year chronic dry mouth and throat, i have just adout tried everything i can fine. I don't smoke anymore, its been 12 year since i quit.i can handle all the other dryness but the dry mouth n throat i cant plus i get canker scores on my tongue, its not the medicine as far as i know, do you think its dehydration?. I drink 80 oz of water every day. I even tried liquid iv, sometimes even water drys out my mouth,thank you for replying

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Replies to "This all started when i hit menopause 12 years ago it gradually. It started with dry..."

@issy58 I have the same problems. I have been diagnosed with lichen planus in my mouth and scalp. Also, dry eye syndrome which is treated with Restasis. You likely need a few specific specialists to look into individual symptoms and hopefully get some help. I have several autoimmune conditions and these Seronegative results make diagnosis very challenging.

@issy58
I have Sjogren's with peripheral and autonomic neuropathy and experience the dry eyes, mouth, and skin. There are drugs that may help. I took 5mg/day of pilocarpine for a couple years and recently switched to 30mg/day of cevimeline. In my experience, they do seem to help a little. The pilocarpine caused me to sweat profusely for 15-20 minutes about an hour after taking it, thus the switch to cevimeline. I haven't noticed any other side effects. Although the palliative effect of these drugs has not been dramatic for me, maybe others have a different experience. And maybe just a little better is a good thing.