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Pleomorphic xanthoastrocytoma tumor (Pxa): help

Brain Tumor | Last Active: Dec 9, 2023 | Replies (132)
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@javierhortal

My son was diagnosed in 2011 with that tumor. He was treated until April 2016. His tumor was grade 3. After participating in a clinical trial, when the tumor grew disproportionately, he died in April 2016.
I want to keep the blog so that the information and the search for possible treatments are known by all ...

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Replies to "My son was diagnosed in 2011 with that tumor. He was treated until April 2016. His..."
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Aug 3, 2018

I am so very sorry to learn about your son, @javierhortal. Although no words can take away the pain of losing a child, I just want to mention how much I respect your resilience in sharing the experience of loss, and keeping a blog "so that the information and the search for possible treatments are known by all …"

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javierhortal | @javierhortal | Aug 4, 2018

Thanks for your words. We're on touch.
Any information about advances in the treatment or research of xanthoasyrocytoma interests me.
A greeting.

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