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Sjogren's Question

Autoimmune Diseases | Last Active: 4 days ago | Replies (57)

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Does anyone have trouble with dry mouth, dry eyes, dry skin, dry Virginia and constipation.i believe I have something in my system that is taking most of my liquids away and it feels like it goes right through me.i was tested for Sjögren but came back negative. Every time I search it comes up with Sjogren.im at a lost as what else to do.any advice would be greatly appreciated.

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Replies to "Does anyone have trouble with dry mouth, dry eyes, dry skin, dry Virginia and constipation.i believe..."

@issy58
Hi,
Hi, I experience similar problems, but only occasionally—usually when my sodium levels are low. In my case, this is related to aldosteronism, a kidney issue, and adrenal insufficiency. Besides taking hydrocortisone, I don’t use additional medication; instead, I use pretzel sticks with ocean salt to help restore my sodium balance.

@issy58 Yes, I have Sjogrens. I was diagnosed a few years ago. My results were positive but I have seen a lot of people whose antibodies came back negative but who still have Sjo. You can get a lip biopsy done.

I do drink a lot of water mixed with coconut water or an electrolyte. That helps but it is VERY easy to move into dehydration so be very mindful every single day. Also try to sip water through the night so you don't wake up already depleted.

Also, check out Sjogrens Foundation. There are a lot of resources on their website. You will learn it is much more the Sicca (which is dryness).

Feel free to reach out. I am happy to share my experiences.
Dana