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Diagnosis Frustrated: How you were diagnosed with NETs?
Neuroendocrine Tumors (NETs) | Last Active: 7 hours ago | Replies (77)Comment receiving replies
@nannybb
Oh, and the only followup for the DIPNECH/NETs has been CT scans at various intervals depending on what they see with nodules, obstruction, etc. I do see an endocrinologist regarding the diabetes. My synthroid dose for hypothyroidism did not change after starting octreotide. Stable. The nodules have stayed pretty stable in size but I have had some new obstruction in the past year. Not really noticeable to me, but it shows up on scans. I’d much rather do an in office injection every 28 days than at home 3x day.
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@californiazebra Good to know the monthly is your choice. I need to hear people in favor of that route. I onlt asked for the daily shots to see how I am going to react to it. (Obviously) I've little faith in some doctors here lately. I think because I'm having such pain right now. Thank you for your comment. Appreciate it.