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Undiagnosed and unsure if it's all in my head
Brain & Nervous System | Last Active: 35 minutes ago | Replies (31)Comment receiving replies
@grass16, Sorry you haven't gotten any answers after seeing so many different doctors. The Chiari malformation of 11.75 mm seems quite a bit above normal from what I've read. Did your doctors talk to you about the MRI findings and what they mean?
I don't know what your age or situation is but have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic that use a multidisciplinary team approach for diagnosing and treating patients?
Replies to "@grass16, Sorry you haven't gotten any answers after seeing so many different doctors. The Chiari malformation..."
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@johnbishop
Thank you for the response, I am 17, so about to go into college, but not old enough to be considered for adult doctors. One of my doctors did mention that I am not being seen that seriously by my pediatric doctors because I am about to graduate to adult. Mayo rejected me as a prospect patient due to pediatrics being full (probably didn't see my case serious enough either) and I have been following up with Duke, but it just does not seem to be going anywhere at all. I know it's only been a few months from my initial diagnosis, but honestly I just feel so many of my doctors are irritated by me (my duke Neurosurgeon is wonderful though). I got the MRI done in the emergency room and my old neurosurgeon said it's likely nothing, the emergency room doctor said it's likely nothing, so I am just lost at this point.