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Pseudomonas aureginosa: When did your doctor decide to start treating?
MAC & Bronchiectasis | Last Active: 12 hours ago | Replies (40)Comment receiving replies
My doctors dont do any type of other testing unless I request. I seem to be one if those patients that look good but I am not . I feel like im my own doctor. I have to request it. Im beginning to wonder if I have had psuedanomas spread. I have had eye subhemmorage in left and right eyes off and on. How do u know that you have a uti with psuedonamas.? My story staryed in 2019 with a bacterium called nocardia elegans / veterana pulmonary. Was treated with 2 different antibiotics for 7 m. Got cleared. Then got very sick again. Had a minor mac chaelonae appear then gone then mac avium along with cancer in upper left lung . Resected left upper lobe in aug 2024 . Seem to be OK. Go back in like 6m for CT scan of lungs. After resection of upper left lobe. I seem to be clear of mac avium . Now I have psuedanomas Aerigenosa in lungs. Dont know what else. I wish I had regular scans snd sputum every 3 to 6 m. But unless I ask I dont seem to get them. I feel so frustrated at times. I do everything I know to stay healthy. Bronchiactisis is a night mare I dont wish on anyone
Replies to "My doctors dont do any type of other testing unless I request. I seem to be..."
@smc17 Perhaps look for another doctor who specializes in Bronchiectasis treatment and is proactive.
@smc17 last year the pulmonologist when he received the results of the sputum culture knew that the ENT Dr has received the same results from the culture he took . the
Pulmonologist immediately referred me to the infectious Disease Center who had called them and they sat up an appt a couple weeks away. the Pulmonologist called back that afternoon and wanted to know if I had been contacted to set up appt. I told him yes and the appt was a couple weeks away . He said no no I want you seen now . I received another call and was told to come in the next day. Meanwhile the ENT Dr called to let me know what showed up in the culture and I told him that the Pulmonologist had already referred me to the Infectious Disease center and he was pleased .
This year when the maxillary culture came back with Psuedomonas the ENT Dr immediately referred me to Infectious Disease Center ,
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@smc17 last year I had 4 different infections one after another , UTI, lung, left eye and left maxillary …my ENT Dr took a culture and my pulmonologist had a sputum culture from me. Both showed Psuedomonas . I was referred to the Infectious Disease Center and put on Zosyn IV antiobotic thru a PICC line for 14 days .
This year it showed up again in my left maxillary , the ENT Dr took a culture and it came back with Psuedomonas . Referred back to the Infectious Disease Dr, put on Zosyn IV through PICC line for 21 days. Dr did another culture at the end of 21 days and it came back “no growth “… good news !