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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: Apr 7 1:09pm | Replies (129)Comment receiving replies
@eesnerd
I appreciate your sharing your experience with @dadcue. I also never had any symptoms. You are right when you say that everyone's case is different. A biopsy will help determine the type and aggressiveness of a NET tumor/lesion.
Since you began your monthly injections, have any follow-up scans been done?
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@hopeful33250
I have my first follow-up PET scan scheduled in a couple of months. So far, the only real impact the NET's have had on my life is financial. My copay for the Octreotide is $1500 a month, but even that is mitigated by the fact that I hit my maximum out-of-pocket in January, so all my medications for the rest of the year are free, including the Octreotide and the high-priced Eloquis. We're making monthly payments to the hospital for all the imaging and the biopsy that took place last year. Later this year, we should be about square with them, and they've been great about it.