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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (57)Comment receiving replies
I also have dipnech , several carcinoid tumors on my lung. I had robotic surgery almost 3 years ago to remove a tumor that was growing. I had serious pain from the surgery for a long time . As a woman , I could not wear a bra for close to a year. It took a good two years for the pain to ease up. I was also told nerve damage. Be patient, the pain eventually goes away.
Replies to "I also have dipnech , several carcinoid tumors on my lung. I had robotic surgery almost..."
@rogo By the way, the bra comment is the same in my case. I've tried to wear a sports bra, or just go without for the most part. But I know that is part of my pain issue. Seems like they could have entered the site just a bit lower on the chest to avoid this from being a problem. 🤦♀️
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@rogo So you never got a nerve block to try to get rid of the pain? I am trying to go back to work and this has been the only thing I've been offered, well, besides getting injections to stop the growth of the other tumors. I asked my surgeon yesterday to please do bloodwork for baseline on all the areas of my body the medicine from the shot might effect...like my gallbladder. I was told he typically does not do that. I really don't want to complicate things, but I feel like I have little choice in my treatment plan.